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Sheila · 01-29-2010, 03:57 PM

I havent posted, but was taken off Tykerb a few days ago...,my CT's 3 weeks ago showed progression, which was obvious to me in my armpit, neck and chest...losing my voice again and coughing which they felt was the neck nodes on the vocal cords...another round of CT's yesterday showed progression even more pronounced in the past 3 weeks, with a mass now encasing and causing obstruction to the left Pulmonary artery and left bronchus, which explains the coughing and shortness of breath. I have also dropped almost 10 pounds in the past 6 weeks. They plan on adding Avastin next week (waiting for approval) to the Herceptin since I did well before on it except for the B/P issues and the nosebleeds....I really felt like the Tykerb/Herceptin was the magic bullet for me....and might have been if I hadn't had to wait and fight for 2 months to get it. I am really bummed over this news...trying so hard to stay positive, but getting so tired of this roller coaster. At this point I feel as though I need a hat trick!
Keep me in your prayers!

01-29-2010, 03:57 PM	#1
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Scanxiety Confirmed, Progression Shown I havent posted, but was taken off Tykerb a few days ago...,my CT's 3 weeks ago showed progression, which was obvious to me in my armpit, neck and chest...losing my voice again and coughing which they felt was the neck nodes on the vocal cords...another round of CT's yesterday showed progression even more pronounced in the past 3 weeks, with a mass now encasing and causing obstruction to the left Pulmonary artery and left bronchus, which explains the coughing and shortness of breath. I have also dropped almost 10 pounds in the past 6 weeks. They plan on adding Avastin next week (waiting for approval) to the Herceptin since I did well before on it except for the B/P issues and the nosebleeds....I really felt like the Tykerb/Herceptin was the magic bullet for me....and might have been if I hadn't had to wait and fight for 2 months to get it. I am really bummed over this news...trying so hard to stay positive, but getting so tired of this roller coaster. At this point I feel as though I need a hat trick! Keep me in your prayers! __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin Last edited by Sheila; 01-29-2010 at 04:00 PM..