HER2 Support Group Forums - View Single Post - This wk things could change, I'm nervous.

Chelee · 01-24-2010, 04:45 PM

Monday morning (tomorrow) is chemo, & this Wed. I have my first PET/CT since my recurrence in Sept. 09. Due to my femur surgery I was "only" on Herceptin & Zometa from Sept. thur Nov. It wasn't till Dec. that we added Navelbine. I sure hope my scans show this is working? Adding the Navelbine so late in the game concerns me. Especially since my onc reduced the dose each wk instead of giving me Neupogen. (I'll be asking her why she did that?!)

Now that I've changed insurance I will be running out to see Dr. Slamon again if this isn't working. I'm still concerned after my last PET/CT because they weren't sure if it was in my liver or not? PET showed low activity...but CT showed nothing in liver? But that area has pain so I can't help but worry. It's bad enough it showed up in bones and axilla last time...I hope this Herceptin/Navelbine/Zometa has done it's job...especially since it's easy to tolerate. I sure have alot of anxiety thinking about my upcoming scan.

Once stage IV is it normal to choose the easier combo's first then to hit it hard?

Chelee

01-24-2010, 04:45 PM	#1
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	This wk things could change, I'm nervous. Monday morning (tomorrow) is chemo, & this Wed. I have my first PET/CT since my recurrence in Sept. 09. Due to my femur surgery I was "only" on Herceptin & Zometa from Sept. thur Nov. It wasn't till Dec. that we added Navelbine. I sure hope my scans show this is working? Adding the Navelbine so late in the game concerns me. Especially since my onc reduced the dose each wk instead of giving me Neupogen. (I'll be asking her why she did that?!) Now that I've changed insurance I will be running out to see Dr. Slamon again if this isn't working. I'm still concerned after my last PET/CT because they weren't sure if it was in my liver or not? PET showed low activity...but CT showed nothing in liver? But that area has pain so I can't help but worry. It's bad enough it showed up in bones and axilla last time...I hope this Herceptin/Navelbine/Zometa has done it's job...especially since it's easy to tolerate. I sure have alot of anxiety thinking about my upcoming scan. Once stage IV is it normal to choose the easier combo's first then to hit it hard? Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.