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Lori R · 12-22-2009, 12:40 PM

Hi Lisa,
I will share my experience with you but I am holding out much hope that being 4 years NED is a GREAT sign. Remember, I was stage IV at diagnosis AND when my met returned, it did so within a year of wrapping up Chemo.

My liver met returned as a single met that was located in the upper left quadrant of the liver. I felt an ache in my left breast scar that I had not felt before and it was getting progressively worse. Although I had passed a PET/CT 6 months earlier, when I had my scan it showed a 3 cm met.

So...my met grew quickly (at least it felt that way to me) and I later did find out that an issue with your liver can trigger pain up into the shoulder.

But!!!!! I had cryosurgery and a round of insurance chemo and have been NED again since May 2009.

You are partaking in the best possible medicine, enjoying your daughter and sounds like enjoying each and every day.

Please keep us posted!!! Till then....warm thoughts coming your way.

12-22-2009, 12:40 PM	#3
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Question about Liver Mets Hi Lisa, I will share my experience with you but I am holding out much hope that being 4 years NED is a GREAT sign. Remember, I was stage IV at diagnosis AND when my met returned, it did so within a year of wrapping up Chemo. My liver met returned as a single met that was located in the upper left quadrant of the liver. I felt an ache in my left breast scar that I had not felt before and it was getting progressively worse. Although I had passed a PET/CT 6 months earlier, when I had my scan it showed a 3 cm met. So...my met grew quickly (at least it felt that way to me) and I later did find out that an issue with your liver can trigger pain up into the shoulder. But!!!!! I had cryosurgery and a round of insurance chemo and have been NED again since May 2009. You are partaking in the best possible medicine, enjoying your daughter and sounds like enjoying each and every day. Please keep us posted!!! Till then....warm thoughts coming your way. __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)