HER2 Support Group Forums - View Single Post - Taxol treatment can result in delayed chronic neuropathy

Wendywins · 12-20-2009, 10:36 PM

My oncologist said the same thing (oncologists were assured that by drug companies...so I do not blame my oncologist who reacted quickly by cutting my taxol dosage by 1/3 per infusion and we discussed whether I should even continue having taxol. I still have the aftereffects in my feet. The pain and pins and needles went away from other parts but nerves in my feet (sides and soles) seem to be permanently damaged. Taxol was administered in 2002...and its been over 7 years since the last infusion. Later I found out that the taxol actually reduced reoccurence by 40% (!) in Her2 pos. E/P negs. like me so I am still glad I did it. (It also similarly enhanced survival!!)
Do you have neuropathy in your feet? You mentioned an arm.
I agree that dry heat helps and cold weather increases the problem. I spent time in Baja Mexico, swam in warm salt water and felt it was VERY therapeutic. What have you tried...?

12-20-2009, 10:36 PM	#4
Wendywins Member Join Date: Sep 2005 Location: Portland, Oregon Posts: 14	Re: Taxol treatment can result in delayed chronic neuropathy My oncologist said the same thing (oncologists were assured that by drug companies...so I do not blame my oncologist who reacted quickly by cutting my taxol dosage by 1/3 per infusion and we discussed whether I should even continue having taxol. I still have the aftereffects in my feet. The pain and pins and needles went away from other parts but nerves in my feet (sides and soles) seem to be permanently damaged. Taxol was administered in 2002...and its been over 7 years since the last infusion. Later I found out that the taxol actually reduced reoccurence by 40% (!) in Her2 pos. E/P negs. like me so I am still glad I did it. (It also similarly enhanced survival!!) Do you have neuropathy in your feet? You mentioned an arm. I agree that dry heat helps and cold weather increases the problem. I spent time in Baja Mexico, swam in warm salt water and felt it was VERY therapeutic. What have you tried...?