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Re: Neratinib Trial 09
Awwww MA...I swear it's always something! I agree it's a good thing they found out there might be another problem before you got started on this trial...but I can sure imagine the disappointment you must feel.  I so admire the way you and your onc work together and stay on top of your bc. It's awful to have have a plan of action and have it fold like that. (As you know I've had alot of monkey wrenches thrown in my plans the last few months...it's so frustrating!) So my heart really goes out to you. But that being said I really do believe something good will come out of this. Something even better! At least this trial brought this to your attention now so that your cardio doc can tweak a few things and get you back in good shape.
Hang in there MA...keeping you in my thoughts & prayers always.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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