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Old 11-26-2009, 04:38 PM   #32
Mary Anne in TX
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Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
Re: Neratinib Trial 09

I would recommend anyone go for this trial....the drug is so promising. Of course, it has to be appropriate in all the right ways, but I would do it again if I could. They marked my chart to allow me to take the drug as soon as it is approved as along as my heart issues get solved. I'll look forward to seeing more people get involved in trials.

I wanted to be in the trial so that I would be observed carefully and that I would have a "reason" (I don't always take good care of me) to go faithfully for the next 5 years! It's hard to go from such incredible care to being a "well" person!

Best wishes to all those volunteering. ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!

Last edited by Mary Anne in TX; 11-27-2009 at 07:15 AM..
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