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Old 11-26-2009, 02:21 PM   #31
freyja
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Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
Re: Neratinib Trial 09

Sorry to hear that Mary Anne, and also glad for you that you were able to find out about that. I've been thinking that may be one of the advantages of consenting to the trial is the chance to be monitored closely and thoroughly examined, again. It seems like once you're out of regular treatment they don't really want to see much of you until you have something nasty pop up. I for one would rather be vigilant now, than sit and wait.
Keep us updated on your "electrical" issues. Would be interesting to learn more about that, for sure. Wonder if it's from Herceptin?
Enjoy your Thanksgiving and all the love in your life,
Celeste
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"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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