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Old 11-26-2009, 01:47 PM   #30
Mary Anne in TX
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Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
Re: Neratinib Trial 09

Good News with some not so good news!
I got put out of the neratinib trial because they couldn't get a good EKG. They did about 6 on Nov. 2 and about 4 more yesterday. They had the same trouble before my surgery but didn't think it was real. They thought I was just to stressed then....well, I was!
Anyway, I'm sad to be out, but incredibly glad they saw the problem. I go to the cardiologist on Dec. 7! I seem to have "electrical" problems!
Next!
Happy Turkey Day to all, ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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