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Jackie07 · 11-21-2009, 06:20 PM

I'm close to completing my '5' years of Tamoxifen. Not sure what my oncologist will recommend. I went behind his back and got a hysterectomy/oophorectomy scheduled early December. The surgeon agreed that it would cut down the 40% elevated risk for my getting ovarian cancer somewhere down the road. After my surgery in early December [Note: ended up getting it Jan. 14], I should start taking aromatese inhibitor (Arimadex or...)in January. Of course, I'll have to 'remind' my medical oncologist on that.

Basically, I think having been born premature caused me to have some genetic defect and immune deficiency that made me cancer prone. I think ever since my (life-long) brain tumor had been found, I should have gotten rid of anything that is not a 'vital' organ. I'm not being 'radical', instead, I'm trying to be rational.

Those doctors can not possibly fault me for not trusting them after they have 'goofed' again and again. And I will not accept the 'title' of a 'hypochondriac'. I just have had enough and don't want to play 'hide and seek' any more.

11-21-2009, 06:20 PM	#3
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Had to stop Tamoxifen I'm close to completing my '5' years of Tamoxifen. Not sure what my oncologist will recommend. I went behind his back and got a hysterectomy/oophorectomy scheduled early December. The surgeon agreed that it would cut down the 40% elevated risk for my getting ovarian cancer somewhere down the road. After my surgery in early December [Note: ended up getting it Jan. 14], I should start taking aromatese inhibitor (Arimadex or...)in January. Of course, I'll have to 'remind' my medical oncologist on that. Basically, I think having been born premature caused me to have some genetic defect and immune deficiency that made me cancer prone. I think ever since my (life-long) brain tumor had been found, I should have gotten rid of anything that is not a 'vital' organ. I'm not being 'radical', instead, I'm trying to be rational. Those doctors can not possibly fault me for not trusting them after they have 'goofed' again and again. And I will not accept the 'title' of a 'hypochondriac'. I just have had enough and don't want to play 'hide and seek' any more. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 09-02-2010 at 06:55 PM..