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Old 11-21-2009, 05:04 PM   #1
DianneS
Senior Member
 
Join Date: Aug 2008
Posts: 327
Had to stop Tamoxifen

Well, I gave it the old college try for about 2 weeks and felt progressively crummy on the Tamoxifen. Spacey, achy, headaches and very tired. My husband said I looked ill. Today I didn't take the bloody pill and feel better already.

I am weakly ER positive and really had to rethink what a benefit of 4-6% meant. Was it worth feeling crummy for a year? If the weather report says '4-6% chance of rain', does it rain? My benefit, I think, would be nothing.

I am postmeno and had my ovaries taken out before the bc dx in 2008, so not much estrogen left.

I could not take Arimidex either. So, I will eat well, exercise, do my Che Gong and pray.

Anyone else quit Tamoxifen? Why? And how are you doing?

Dianne
__________________
Three years and 5 months NED
Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm
Grade 3
8/9 Richardson/Bloom test
ER+ weakly positive
Alred Score: 4 (suggesting I would strongly benefit from hormone therapy)
PR-,
HER2 positive +++
No vascular invasion
No lymph nodes involved
Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!
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