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Old 11-19-2009, 11:15 AM   #3
hutchibk
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Re: Striking a Major Nerve

I AGREE with you 1000% and I appreciate your view from the inside. This political destruction of our healthcare system is an abomination.

It is obvious that a war is being waged on elder patients and dire stage IV cancer patients in the UK, with their rationing of life extending methods and treatments (today news of a liver cancer drug being denied by NICE because of expense). If we aren't VERY awake, this is exactly what is coming down the pike here ~ and with the new Task Force recommendations, that is just a small taste of what's to come. They are lying through their teeth in their response to it. And there was more in the report than just the detestable mammogram recommendations. The report was an all out assault on women's health:

Breast Cancer Follies
By Robert M. Goldberg on 11.18.09 @ 6:07AM

Think Congress is regretting having allocated over a billion dollars to let the government generate studies to tell us what medical tests and procedures should be covered under Obamacare?

In the wake of the U.S. Preventive Services Task Force recommendation to tell women in their forties to take a hike on mammograms, and to suggest that other screening technologies aren't worth the money, I bet it won't be long before that budget and the agency that has it and also controls the information the Task Force uses to make such wise decisions, the Agency for Healthcare Research and Quality, are the subjects of congressional hearings.
The breast cancer recommendations come in a 30-page review of 10 studies that even the authors admit cannot be generalized to individual forms of breast cancer and different groups of patients .

But there's more. The Task Force on Monday also issued a second recommendation that has received no media coverage -- on screening for heart disease. Because heart disease kills more women than breast cancer, that decision could be even more dangerous for women because it is based on -- or biased towards -- old, even outdated methods for determining risk for a serious illness.

The Task Force rejected the use of a test for heart inflammation called C-reactive protein (CRP) as a reliable predictor of risk of heart disease. Instead, it said doctors should stick to a rule of thumb called the Framingham Risk Evaluation (FRE).

The FRE uses the number of fatal and nonfatal heart attacks suffered by workers in Framingham, Massachusetts, within a ten-year period, and it is based on a summary estimate of major risk factors for coronary heart disease, such as age, blood pressure, blood cholesterol levels and smoking.

How did the Task Force conclude CRP testing is worthless? The Agency for Healthcare Research and Quality told them so based on "the evidence."

But AHRQ ignored three recent studies demonstrating the importance of CRP. A 2005 study from Johns Hopkins and funded by the National Institutes of Health found that the FRE fails to identify approximately one-third of women likely to develop coronary heart disease. Many women deemed "low risk" by the geniuses at AHRQ had had coronary atherosclerosis, which even the Task Force will admit predicts heart attacks.

Second, it ignored the JUPITER ("Justification for the Use of Statins in Primary Prevention: An Intervention Trial Evaluating Rosuvastatin") study. That experiment tested whether giving healthy people with low LDL cholesterol levels but high hs-CRP levels would reduce death from heart attacks. It did. Or more to the point, it showed that screening CRP along with cholesterol tests can cut the incidence of heart disease by 40 percent in high risk individuals with statins and reduce death from heart disease by 20 percent.

Third, the Task Force, in a rush to save a buck for Obamacare, skated past the most recent findings from JUPITER that apply particularly to women. Forty percent of JUPITER's participants were women 60 and over with low cholesterol and no history of heart disease but were tested and found to have high levels of inflammation. It turns out that women are more likely to benefit from testing and treatment than men: the incidence of heart disease of any form was cut by 46 percent in women over 60 compared to 42 percent in men over 50.
But that's not the Task Force recommendation. Instead, the Task Force, relying on a review of studies and research that ignored these important findings and stopped looking in 2002, just when the understanding of CRP as a predictor was in its infancy, came to a pre-ordained conclusion that conveniently fits the party line that so-called evidence-based medicine can actually reduce the cost of care even as government creates a new health care entitlement.
The one-size fits all recommendation for breast cancer screening ignored the fact that breast cancer is not just one disease, but many related illnesses with different pathways and signatures. Worse, it acknowledged the wide variation that makes individualized risk assessment essential but went on to claim it wasn't worth the effort. And it failed to estimate the impact of telling women to simply go away. It took years to build up screening rates to where new drugs could have an impact on mortality. Now all that could be undone.
Similarly, the failure to take into account advances in testing and treatment, insights that will save the lives of thousands of women, is hard to explain, let alone justify. Dr. Diane Petitti, vice chair of the Task Force, maintains: "we have to say what we see based on the science and the data."

But if you only see what you are shown, then what you see or say isn't really science. It's politics. And if you think these two decisions were controversial, just wait. With billions to spend and a high profile, the AHRQ and its Preventive Services Task Force will turn prevention into just another word for saying "no" to medical innovation.

http://spectator.org/archives/2009/1...cancer-follies


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I know Joe does not want the boards to be filled with political activism or bickering (and I will remove this post if he wishes me to), but this is so much bigger than that right now. We are on the verge of the "something that must be done to fix the health system" being ABSOLUTELY the WRONG something. There have been many proposals to approach improvements, enhancement, refinements of the system in incremental, visionary ways and not two 2000+ page governmentalized overhauls that will cost more in premiums, taxes, and medicare cuts, will mean less doctors, longer waits, rationing recommendations as we tasted this week, and will mean an all out assault on the sickest patients and most expensive patients, e.g. those of us who are fighting for every last minute and breath that we can possibly extract from this life. I know the argument that there is already rationing alive and well in the system by insurance companies. My friends, the genesis of that rationing is Medicare, a government program. All private insurance follows Medicare denials and guidelines, but luckily to a much lesser degree, about 50% on average. If the governmentalizing of the ENTIRE system is allowed to proceed, the type of task force recommendations we have seen this week in the news will become mandates (like the one that a woman 50 and over cannot not have an annual pap smear/pap exam paid for by Medicare, it is now only paid every 2 years... regardless of you medical history. I know, I am one of those denied women this year) and those of us who are the most expensive to treat will have less and less options and less and less access to life extending treatments. It is time for everyone to become very very apprised of what these politicians are attempting to do, what the philosophies and politics are that are driving them, and to extract from this mess what is really, truly necessary to actually fix the issues folks want fixed. This path they are on is so wrongminded and will create a system that attempts to be One Size Fits ALL because they are intellectually lazy and politically expedient. One Size Fits All fixes are an impossibility and will screw those of us who need the most freedom and choices in our care.

Here is another interesting article to read...

http://www.littlechicagoreview.com/p...nce_id=4535467
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 11-21-2009 at 01:17 AM.. Reason: typo
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