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Old 11-18-2009, 01:12 PM   #27
KristyAnn
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Join Date: Nov 2009
Posts: 11
Re: Neratinib Trial 09

Hi Mary Anne,
I am in the trial at the Tyler Cancer Center in Tyler, Texas- my onc is very active and last time I saw her, she told me she had the most patients in the trial at that time- she is VERY excited about neratinib.
Currently I take immodium often and on a schedule to try to manage the side effects- I am on where near controlling them. I also eat a diet high in potassium and magnesium since I ended up on IV potassium after the first month on neratinib. Hopefully things will settle down a bit- another online friend in the Stage 3 trial said it took her side effects about 2 months to become manageable.
Kristy
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