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Chelee · 11-15-2009, 01:04 AM

Alice, I see you had a PET/CT last yr & you have a question mark on hips/pelvis? Did it show some activity in the hip & pelvis area? I only ask because my baseline PET/CT showed slight activity and it was recommended they follow-up with MRI to rule out metastasis. (However they never did because they said it lit up due to my scoliosis.) Now looking back I had mets to hips from day one. I wish I would of forced them back then to MRI both hips and I would not be in this situation right now.

So I am glad to see you having your hips checked out now...I would push for MRI of hips & pelvis just to be on the safe side...and for peace of mind. Especially if your having pain in your hips. I had pain in both mine before being dx with bc...but neuro doc told me it was bursitis. But now I wonder it if was mets all this time verses bursitis? I know you mentioned having scoliosis also...so it just might be a degenerative problem after all these yrs. Opps...I just re-read your other post & I see your getting your MRI and PET reports off line to take to doctors. So you already had a MRI. Is that MRI of hips recent? I'm glad to see your looking into this and staying on top of it...very good idea. What kind of work-up does these doctors have planned for you besides just a x-ray? Have they told you the plan yet? I hope they can get to the bottom of your pain and correct it.

Chelee

11-15-2009, 01:04 AM	#4
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: hip problems evaluated Alice, I see you had a PET/CT last yr & you have a question mark on hips/pelvis? Did it show some activity in the hip & pelvis area? I only ask because my baseline PET/CT showed slight activity and it was recommended they follow-up with MRI to rule out metastasis. (However they never did because they said it lit up due to my scoliosis.) Now looking back I had mets to hips from day one. I wish I would of forced them back then to MRI both hips and I would not be in this situation right now. So I am glad to see you having your hips checked out now...I would push for MRI of hips & pelvis just to be on the safe side...and for peace of mind. Especially if your having pain in your hips. I had pain in both mine before being dx with bc...but neuro doc told me it was bursitis. But now I wonder it if was mets all this time verses bursitis? I know you mentioned having scoliosis also...so it just might be a degenerative problem after all these yrs. Opps...I just re-read your other post & I see your getting your MRI and PET reports off line to take to doctors. So you already had a MRI. Is that MRI of hips recent? I'm glad to see your looking into this and staying on top of it...very good idea. What kind of work-up does these doctors have planned for you besides just a x-ray? Have they told you the plan yet? I hope they can get to the bottom of your pain and correct it. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.