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Old 11-10-2009, 06:07 AM   #13
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
Re: The treatment dilema, no T-DM1

Sheila I'm really disappointed to read this latest encounter with the trial process. I hope you'll get good reports from the cardiologist and more encouragement from your onc. today. It sounded like your experience with the people in decatur was that they were only interested in the data of the trial mechanism and not the humans involved. That trial is offered also in Sioux City Iowa. I've emailed the contact person on the website, Patty Solberg, twice asking for information for myself. I've not even had a reply from her! I'm hoping all the good reports from the tykerb / hercpetin paring are going to be your experience with it too.
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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