HER2 Support Group Forums - View Single Post - Trt stopped, & now a wheelchair & walker...

Barbara H. · 11-06-2009, 07:10 PM

Actually, the platelets do fall in the T-DM1 trial. I had frequent nose bleeds. Chelee, I really think you should try to get into the T-DM1 trial. However, I don't think you can get into it until you have surgery. In the meantime, you can continue with the Herceptin. It seemed to be helping. T-DM1 is very effective and easily tolerated. You would find it much easier to endure than Navelbine.
T-DM1 worked for me for two years and was still working, but it gave me lung inflammation. I'm the only one who had it so don't worry about that. I had to go off the trial for my safety, but will still consider it an option when it is eventually approved.
Good luck, Chelee. I just have a feeling that you will be OK and be in much better spirits one you have this surgery behind you.
Best wishes,
Barbara H.

11-06-2009, 07:10 PM	#9
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Re: Trt stopped, & now a wheelchair & walker... Actually, the platelets do fall in the T-DM1 trial. I had frequent nose bleeds. Chelee, I really think you should try to get into the T-DM1 trial. However, I don't think you can get into it until you have surgery. In the meantime, you can continue with the Herceptin. It seemed to be helping. T-DM1 is very effective and easily tolerated. You would find it much easier to endure than Navelbine. T-DM1 worked for me for two years and was still working, but it gave me lung inflammation. I'm the only one who had it so don't worry about that. I had to go off the trial for my safety, but will still consider it an option when it is eventually approved. Good luck, Chelee. I just have a feeling that you will be OK and be in much better spirits one you have this surgery behind you. Best wishes, Barbara H.