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Lori R · 11-01-2009, 05:41 PM

Rich,
I am so sorry to hear about your mom's progression. She is so fortunate to have such a well educated loving, warrior son by her side.

Scans and waiting for results is such a terribly stressful time. There is no way that I could have not peaked at the results. (too bad we aren't talking about our Christmas gives stored in the back of the closet) I now schedule my Pet/CTs as late as possible before I meet with my dr. Usually 1 - 2 days.

I noticed that Carolyn mentioned Abraxane. For now, I am an Abraxane cheerleader. My first chemo was taxotere which worked well for 1 yr 1/2. I have found the Abraxane much more tolerable in terms of mouth tinglies, neuropathy and I EVEN have a little of my fuzzy hair. The down side is that as with the other taxanes, it messes with the white blood count. I've been able to receive full doses for about 75% of the time.

I think it is worth asking your Onc about.

As you know...there are A LOT more options out there. Just need to find the right one!!

Sending a big hug to mom.....Lori

11-01-2009, 05:41 PM	#12
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Update: bad Rich, I am so sorry to hear about your mom's progression. She is so fortunate to have such a well educated loving, warrior son by her side. Scans and waiting for results is such a terribly stressful time. There is no way that I could have not peaked at the results. (too bad we aren't talking about our Christmas gives stored in the back of the closet) I now schedule my Pet/CTs as late as possible before I meet with my dr. Usually 1 - 2 days. I noticed that Carolyn mentioned Abraxane. For now, I am an Abraxane cheerleader. My first chemo was taxotere which worked well for 1 yr 1/2. I have found the Abraxane much more tolerable in terms of mouth tinglies, neuropathy and I EVEN have a little of my fuzzy hair. The down side is that as with the other taxanes, it messes with the white blood count. I've been able to receive full doses for about 75% of the time. I think it is worth asking your Onc about. As you know...there are A LOT more options out there. Just need to find the right one!! Sending a big hug to mom.....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)