View Single Post
Old 11-01-2009, 01:56 PM   #4
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: Found out too late?

Hi Mavis,

Ahhh yes, sometimes a little too much information is just what we need to think oh my gosh, what does THAT mean?!?!?!

Sometimes it means nothing at all; and it's not a bad thing that your team has consensus that you are doing well. 5 1/2 years out is indeed "doing well". Very well!

I wouldn't read anything into the fact that your report had numbers, and your friends' didn't. It very much depends on the facility how they report these things. So the fact that you had numbers and someone else didn't does not mean that your number would have been higher.

A couple of other thoughts...
At the time of your diagnosis Hereceptin was still in ongoing clinical trails in the adjuvant setting (to prevent recurrence after early stage cancer such as yours). It was not approved for early stage BC, only for metastatic. So a borderline Her2 status may not have changed your treatment recommendations - and it is unlikely you would have been treated with herceptin.

Take heart from the fact that you are several years out from your initial diagnosis; the longer you go without recurrence, particularly with Her2+++, the better chance you will not have a recurrence.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote