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Jackie07 · 10-30-2009, 05:51 PM

Angela,

Wow, you sure have been through a lot!

Your family may be the one that needs a break...

I went to a rehabilitation counselor 3, 4 years after my first brain tumor surgery. He explained to me that while a person with 'head injury' thinks he is doing things the normal way, others observe it as in 'slow motion'.

The brain needs time to heal. The best way to heal it is to keep it up and get those brain cells connected (synapse) by exercising both physically and mentally. Working part-time could be an excellent solution if your employer will work with you.

I have finally applied for disability after 4 major surgeries (since 1990) all involved with head injuries (yes, chemo and radiation 'hurt' our brain - but our brain can recover - do you know that most people don't use but 3% of their brain cells?) It's not admitting defeat, though it felt that way and I did wrestle with it.

Relizing that 'coordinating' your own care with all parties involoved is quite a [full-time] job. Let your loved ones know that 'Her-2' breast cancer is now the best type one can have because of herceptin. Be careful when reading statistics becaue Herceptin was not widely used until after 2005. (Approved for first-line treatment in 2007?) Many of our members are 'long-time survivors' (you can check those 'threads' by using the 'Search' button.)

10-30-2009, 05:51 PM	#8
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Need Advice Angela, Wow, you sure have been through a lot! Your family may be the one that needs a break... I went to a rehabilitation counselor 3, 4 years after my first brain tumor surgery. He explained to me that while a person with 'head injury' thinks he is doing things the normal way, others observe it as in 'slow motion'. The brain needs time to heal. The best way to heal it is to keep it up and get those brain cells connected (synapse) by exercising both physically and mentally. Working part-time could be an excellent solution if your employer will work with you. I have finally applied for disability after 4 major surgeries (since 1990) all involved with head injuries (yes, chemo and radiation 'hurt' our brain - but our brain can recover - do you know that most people don't use but 3% of their brain cells?) It's not admitting defeat, though it felt that way and I did wrestle with it. Relizing that 'coordinating' your own care with all parties involoved is quite a [full-time] job. Let your loved ones know that 'Her-2' breast cancer is now the best type one can have because of herceptin. Be careful when reading statistics becaue Herceptin was not widely used until after 2005. (Approved for first-line treatment in 2007?) Many of our members are 'long-time survivors' (you can check those 'threads' by using the 'Search' button.) __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 10-31-2009 at 02:07 AM..