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Old 10-27-2009, 11:32 AM   #21
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Breast cancer treatment, novel H1N1 2009 pandemic, and risk

Hey Vickie - Great to "see" you!

I went over this very question with my onc's nurse practitioner last week. She says they are going case by case with their patients.

In my case I am recommended to get the seasonal shot, and perhaps the H1N1 if there is enough to go around after the most vulnerable people have the vaccine. (Thus I am put down the list, also since I have no other underlying weakening condition.)

Having been out of immuno-compromising treatment for a few years now, they say my blood work has shown consistently that I have recovered from the hard treatments I had. Also, the fact that I have had very little in the way of colds and flu since that time, shows that I can exist in the "normal microbe environment" and hold my own.

My plan is to take the precautions I normally take, keeping away from people who cough, sneeze or even SOUND like they could be sick. Use antibacterial wipes on places my hands touch, including door knobs, steering wheel, faucets, etc. This may not get the H1N1, but cut the risk of the other bugs that will latch on to a flu-weakened system.

I use a lot of salt water to gargle and saline to clean my nostrils. Drink hot tea before bed.

Guess it will be December before my next doctor visits and either my GP or onc may have me get the H1N1 shot then.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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