HER2 Support Group Forums - View Single Post - Problems with my Port--any one else had this experience?

Nancy L · 10-25-2009, 06:52 PM

My sister had nothing but problems with her port. Only one oncology nurse at Cedars Sinai was able to access it. The problem was that it was tipped and that it was totally below the surface. I think the doc went for the best cosmetic result.

I have never had one single problem with my port and it is four years now. I had it installed by the doc they call the "Port King" of the Palm Springs area. With all the seniors down here, he does them daily. My port is very visible and I think that helps---the nurses tell me it is a dream. One thing the port doc does is put all his patients with a port on 1 mg of coumadin daily to prevent any possible problem with a clot. This low dose does not require getting your PTT/INR tested and I have never had an issue with clotting. I tell everyone I know who is diagnosed to get a port before any treatment. I didn't and now I have very few veins that can be used.

10-25-2009, 06:52 PM	#11
Nancy L Senior Member Join Date: Apr 2009 Location: La Quinta, Ca Posts: 253	Re: Problems with my Port--any one else had this experience? My sister had nothing but problems with her port. Only one oncology nurse at Cedars Sinai was able to access it. The problem was that it was tipped and that it was totally below the surface. I think the doc went for the best cosmetic result. I have never had one single problem with my port and it is four years now. I had it installed by the doc they call the "Port King" of the Palm Springs area. With all the seniors down here, he does them daily. My port is very visible and I think that helps---the nurses tell me it is a dream. One thing the port doc does is put all his patients with a port on 1 mg of coumadin daily to prevent any possible problem with a clot. This low dose does not require getting your PTT/INR tested and I have never had an issue with clotting. I tell everyone I know who is diagnosed to get a port before any treatment. I didn't and now I have very few veins that can be used.