HER2 Support Group Forums - View Single Post - VickieH

StephN · 10-18-2009, 10:51 PM

Dear Vickie -
I am so glad you posted, as I was about to ring your bell and find out how you are. Naturally I am extremely sorry the last trial drug did not do the job. We have missed your wit and charm here.

Is there ANY way to get into a T-DM1 trial?? I have a friend who is having good results against her skin mets with just three doses so far. I will be posting on that thread. She had become too weak for any other chemos and had been reduced to 1/2 dose on her last round of cytoxin. Her onc had told her he did not know what else to give her and she persisted on her own and got into this trial in Coeur d'Alene, Idaho. They are closing it soon.

I do so wish there was a way for you to get this drug. The Idaho trial is also for Pertuzumab for those who do not show good improvent on the T-DM1 alone. So far my friend has not had the Pertuzumab.

I am right there holding those twigs and branches with you, dear sister. Your faith is strong, as is our faith in you.

10-18-2009, 10:51 PM	#21
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: VickieH - trailblazing Pazopanib Dear Vickie - I am so glad you posted, as I was about to ring your bell and find out how you are. Naturally I am extremely sorry the last trial drug did not do the job. We have missed your wit and charm here. Is there ANY way to get into a T-DM1 trial?? I have a friend who is having good results against her skin mets with just three doses so far. I will be posting on that thread. She had become too weak for any other chemos and had been reduced to 1/2 dose on her last round of cytoxin. Her onc had told her he did not know what else to give her and she persisted on her own and got into this trial in Coeur d'Alene, Idaho. They are closing it soon. I do so wish there was a way for you to get this drug. The Idaho trial is also for Pertuzumab for those who do not show good improvent on the T-DM1 alone. So far my friend has not had the Pertuzumab. I am right there holding those twigs and branches with you, dear sister. Your faith is strong, as is our faith in you. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.