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Chelee · 10-15-2009, 04:19 PM

I just called Dr. Slamon's office to talk to his NP. I told her I'm not having any luck in getting calls backs about this study from my cancer center. I've tried all day. Interesting enough she named an oncologist that is part of running this study at my cancer center and it just happens to be MY onc. (Thats sure nice that my onc never mentioned this T-DM1 study as an options for me) She just said I could do herceptin with Navelbine, Taxotere, Tykerb or whatever I wanted...it was up to me.

So anyway Dr. Slamon's NP made some calls and so far it looks like the study is full at my center? So I might have to drive up to UCLA to do this. We left here yesterday at noon and did not get home till 8:30 PM...the traffic was unbelieveable! The things we do once we live in cancerland. Dr. Slamon's NP will be making some calls and get back to me tomorrow...I sure hope this can be worked out.

Chelee

10-15-2009, 04:19 PM	#3
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Recommendation from my 2nd opinion... I just called Dr. Slamon's office to talk to his NP. I told her I'm not having any luck in getting calls backs about this study from my cancer center. I've tried all day. Interesting enough she named an oncologist that is part of running this study at my cancer center and it just happens to be MY onc. (Thats sure nice that my onc never mentioned this T-DM1 study as an options for me) She just said I could do herceptin with Navelbine, Taxotere, Tykerb or whatever I wanted...it was up to me. So anyway Dr. Slamon's NP made some calls and so far it looks like the study is full at my center? So I might have to drive up to UCLA to do this. We left here yesterday at noon and did not get home till 8:30 PM...the traffic was unbelieveable! The things we do once we live in cancerland. Dr. Slamon's NP will be making some calls and get back to me tomorrow...I sure hope this can be worked out. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.