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Progression in Lung Mets - Advice?
Blah, latest PET/CT shows progression in the lungs. Not much but still progression nonetheless. Tumor markers have been slowly climbing and we thought it was because of the new brain met I had but turns out it was probably due to this lung progression.
Onc is recommending adding Gemzar. What do y'all think? Any experience with Gemzar?
I am feeling like I want to be more aggressive. I'm interested in investigating some of the trials. Neratinib? Purtuzamab? T-cell trial at U of W? What to do? What to do? Feeling overwhelmed and frustrated. What a horrible birthday present - lung mets. Nice.
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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