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sassy · 10-13-2009, 06:12 PM

Maureen,

As Chrisy said, what would the rationale be for halting Herceptin? Seems it would be even more important should this be a recurrance. Is this perhaps a knee jerk reaction?

What is your new onc's experience with HER2+ BC?

All that said, I too had a small spot show on my lung while on Herceptin. My onc felt certain it was a small exposure during radiation, and nothing more has come of it, four years later. I had a CT two weeks ago that was clear.

Getting the oncs to consult with one another would surely be helpful.

Sending strength,

10-13-2009, 06:12 PM	#8
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Re: PET scan....scared... Maureen, As Chrisy said, what would the rationale be for halting Herceptin? Seems it would be even more important should this be a recurrance. Is this perhaps a knee jerk reaction? What is your new onc's experience with HER2+ BC? All that said, I too had a small spot show on my lung while on Herceptin. My onc felt certain it was a small exposure during radiation, and nothing more has come of it, four years later. I had a CT two weeks ago that was clear. Getting the oncs to consult with one another would surely be helpful. Sending strength, __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!