Stage 4/NED-how long did it last for you?
I have a scan on 23 Oct and have been NED since Jan 07 so 2 years and 9 months.
I was wondering that since I was a very aggressive grade 3 with very fast tumours (qualified as terrorist tumours by a radiologist) I kind of think that if they should have been back they would have been by now...Except for Missy it seems to me that stage 4 seems to relapse within 2 years or then go on to become long term NED..
Is this an impression or am I completly wrong..(???) if you could say either how long your stage 4 NED has lasted before first relapse or hopefully how long it has been so far and what grade you were it would be good to know.
Thanks
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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