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Chelee · 10-01-2009, 05:19 PM

I've called twice and left my information...& I have also emailed them. I have not heard back from them by phone or email and it's been a while since I contacted them. If there study is full you would think they would post that some where or at least have someone get back to us.

I have a brain MRI set-up for Oct. 6th at my cancer center now...so it doesn't matter to me. I thought being in the study would of been nice, but now that I've had a recurrance I'm not waiting. I do hope they eventually let people know if it's full or not. Good luck to those waiting.

Chelee

10-01-2009, 05:19 PM	#36
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: FREE Brain MRI FREE I've called twice and left my information...& I have also emailed them. I have not heard back from them by phone or email and it's been a while since I contacted them. If there study is full you would think they would post that some where or at least have someone get back to us. I have a brain MRI set-up for Oct. 6th at my cancer center now...so it doesn't matter to me. I thought being in the study would of been nice, but now that I've had a recurrance I'm not waiting. I do hope they eventually let people know if it's full or not. Good luck to those waiting. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.