HER2 Support Group Forums - View Single Post - Kidney issues -anyone else?

DianneS · 09-23-2009, 12:33 PM

Thanks, Marily. You're staying on top of a lot of stuff. Good for you! We certainly have to be our own advocate these days. Thank goodness for internet even though a lot of info has to be sifted through.

I am alarmed at what happened to you with herceptin. Was your heart problem sudden - you say you went down very fast? How often were you being monitored? Did they use echocardiogram or MUGA?

And you are right about the kidney/bladder issues. One does not necessarily go with the other. It is a good idea to be aware of your labwork and watch the numbers but also be aware that labwork is going to go up & down while doing herceptin and for awhile afterwards. My GFR is up 5 points at 55 this week, so that's good. We will hopefully find out what is doing this tomorrow during the test.

Talk to your naturopath or doc before taking Strontium II. It may not be available in the States. This is not the radioactive type which is 69 or 89 I think. I have the info downstairs and will dig it out of my files if you want me to. I have not taken it yet because on the bottle they don't recommend anyone with kidney disease take Strontium II. Altho my doc just told me he would say I am 'compromised' not kidney disease. I'm still playing it safe

Dianne

09-23-2009, 12:33 PM	#18
DianneS Senior Member Join Date: Aug 2008 Posts: 327	Re: Kidney issues -anyone else? Thanks, Marily. You're staying on top of a lot of stuff. Good for you! We certainly have to be our own advocate these days. Thank goodness for internet even though a lot of info has to be sifted through. I am alarmed at what happened to you with herceptin. Was your heart problem sudden - you say you went down very fast? How often were you being monitored? Did they use echocardiogram or MUGA? And you are right about the kidney/bladder issues. One does not necessarily go with the other. It is a good idea to be aware of your labwork and watch the numbers but also be aware that labwork is going to go up & down while doing herceptin and for awhile afterwards. My GFR is up 5 points at 55 this week, so that's good. We will hopefully find out what is doing this tomorrow during the test. Talk to your naturopath or doc before taking Strontium II. It may not be available in the States. This is not the radioactive type which is 69 or 89 I think. I have the info downstairs and will dig it out of my files if you want me to. I have not taken it yet because on the bottle they don't recommend anyone with kidney disease take Strontium II. Altho my doc just told me he would say I am 'compromised' not kidney disease. I'm still playing it safe Dianne __________________ Three years and 5 months NED Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm Grade 3 8/9 Richardson/Bloom test ER+ weakly positive Alred Score: 4 (suggesting I would strongly benefit from hormone therapy) PR-, HER2 positive +++ No vascular invasion No lymph nodes involved Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!