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Old 09-22-2009, 01:08 AM   #8
Marily
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Join Date: Mar 2006
Location: Aurora CO
Posts: 75
Re: Kidney issues -anyone else?

Hi ,
I too have been seeing changes in kidney numbers. My Onc. said don't worry but the next month the egfr went down to 30.I worried and found a nephrologist.! I have had tests and blood work done and see Kidney specialist again next week. I have been off Herceptin for a year,(took it for over 8 years) and remain on Aromasin. We re-looked at the pills I was taking ...removed all NSAIDS, my pain pills, most of the vitamins and changed me to one vitamin pill that people on dialysis take.(I did have to go back on Magnesium since cramping came back something awful) I am trying to drink more water but have always been bad at that... Why after 10 years Out , and all the real bad cancer drugs stopped am I now finding out about kidney problems? I reacted many years after being on Herceptin with congestive heart failure... maybe I am just slower to have things go wrong? I would really love to find out what to do about this problem. Just don't want to end my days with dialysis. Especially since NED after stage IV breast cancer. One other thing .. I have just had spine surgery again....this time for lower spine area, last year for 4 neck bones.. is anyone having this bone degeneration also? Will follow this link with much interest.
hugs to all
Marily
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Marily
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