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Old 09-19-2009, 11:54 AM   #30
DianneS
Senior Member
 
Join Date: Aug 2008
Posts: 327
Re: HER2 positive and 10 years out?

Also -
How do they know I'm cancer free? What tests do they do to determine NED? I haven't had a regular exam, where they feel for lumps (I had dbl mastecomies) since about June. I have had bloodwork but my onc doesn't believe in tumour markers so he doesn't do them. I guess that's why I feel unsure because I don't know what the determining factor is in saying someone is NED.

My family doc did the tumor markers for me last month, and they were all in normal limits but a bit higher than when I still had my tumor. No one seems concerned so I don't know what to think. The doc who is giving me herceptin said 'we don't worry when it goes up a little - it's when it makes a huge jump that we get concerned'. Oh? That true?

One blood test I am getting in Oct. says 'T protein'. Anyone know what this is?

Questions questions!

Dianne
__________________
Three years and 5 months NED
Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm
Grade 3
8/9 Richardson/Bloom test
ER+ weakly positive
Alred Score: 4 (suggesting I would strongly benefit from hormone therapy)
PR-,
HER2 positive +++
No vascular invasion
No lymph nodes involved
Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!
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