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DianneS · 09-12-2009, 04:26 PM

Hi ladies,

I am just wondering why my onc gave me an '80% no recurrence in 10 years' prognosis.

I would like to talk to anyone who is 10 years out with her2 pos and no recurrence.

I guess I am really scared and also wondering why I did surgery, chemo and herceptin? What chance do I have to seeing my 65th birthday? Based on stats?

Another question: I started chemo (taxotere, carbo and herceptin) in Nov. 2008. I had surgery in Sept. 08 - dbl mast. I could only do 5.5 tx of the TC regimen out of the 6 usually done. Did that put me at risk, waiting?

Plus AI's/Tamoxifen won't benefit me much -4-6% as I am weakly ER positive. So I'm in THAT club as well.

My anxiety is maxed out and I wonder why bother doing anything at all if they can't even give me one patient who is around at the 10 year and plus mark. They say 'they are out there' Where or where are you?!!

Is there anyone who is approaching the 10 year mark w/o recurrence?

I need a shred of hope. Keep wondering if I've had one more year or one less year.

Dianne

09-12-2009, 04:26 PM	#1
DianneS Senior Member Join Date: Aug 2008 Posts: 327	HER2 positive and 10 years out? Hi ladies, I am just wondering why my onc gave me an '80% no recurrence in 10 years' prognosis. I would like to talk to anyone who is 10 years out with her2 pos and no recurrence. I guess I am really scared and also wondering why I did surgery, chemo and herceptin? What chance do I have to seeing my 65th birthday? Based on stats? Another question: I started chemo (taxotere, carbo and herceptin) in Nov. 2008. I had surgery in Sept. 08 - dbl mast. I could only do 5.5 tx of the TC regimen out of the 6 usually done. Did that put me at risk, waiting? Plus AI's/Tamoxifen won't benefit me much -4-6% as I am weakly ER positive. So I'm in THAT club as well. My anxiety is maxed out and I wonder why bother doing anything at all if they can't even give me one patient who is around at the 10 year and plus mark. They say 'they are out there' Where or where are you?!! Is there anyone who is approaching the 10 year mark w/o recurrence? I need a shred of hope. Keep wondering if I've had one more year or one less year. Dianne __________________ Three years and 5 months NED Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm Grade 3 8/9 Richardson/Bloom test ER+ weakly positive Alred Score: 4 (suggesting I would strongly benefit from hormone therapy) PR-, HER2 positive +++ No vascular invasion No lymph nodes involved Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!