|
Re: Lani, propeller heads, and WBR sisters/brothers ~ looking for info and ideas
Brenda: I suffer from brain holes. Eleven mets now with Cyberknife. I have read your history, but could you recap how many total you have had and confirm you have had 5 sessions of IMRT? How many total grays have you had to the brain? Are the previous mets all gone?
Had any thoughts of Avastin? What about Proton Beam Therapy? Would it/could it be used to save on radiation exposure for later use?
I will be thinking of you and brainstorming (best my brain will let me) about your circumstances.
I have a friend who was sucessfully treated in 2002 with gamma followed by WBR with no reccurences, but it made her very sick for 6 months and she has had cognitive issues with memory and now takes Ritilin. She also only presented with one brain met. A trade off, I guess, to be still with us and no reccurences
xoxoxox
Darlene
__________________
12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
|