Thread: Hair
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Old 08-20-2009, 03:18 PM   #16
StillHere
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Join Date: Mar 2007
Location: Greendale, WI just outside Milwaukee
Posts: 211
Re: Hair

Diannes, Thanks for mentioning how happy we all were when we went to the Galapagos. It is bittersweet. I had planned the family trip so that my kids had great family memories in case I did not stay stable very long. Little did I know that God would take our son, Randy away from us last Feburary. Now I wish I had a hundred more pic's of him. Now to get to your question on Arimadex. I stopped not because of nausea, but because within two days of starting the medication I became dry as a desert (and I mean everywhere). My vagina felt like it colapsed in on it's self and closed shut. I had NO libido(and I mean nothing). It was like kissing my brother (very weird). My Onco wished I would stay on Arimidex, but agreed with my decision. I was on Tamoxafin for 1.5 yrs and everything was stable. CA27-29 started slowly and steadily rising so I agreed to go on Femara if I could get estrogen cream. It took about 1 yr for side affects from Femara. Have lots of large joint pain especially in Knees & hips. I was using estrogen cream, but have stopped due to slight increase in CA27-29 marker. Marker had stayed under 40 w/o the cream and I do not drink caffine before my blood tests. Someone on the site suggested to cut out the caffine before the test and it seems to make a difference. Hope this is not more than you wanted to hear. I tend to be very frank. I have had a couple of anxious momemts with markers rising over 40, but PET scans are always OK, so I have nothing to complain about. Peace Karen
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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