[michka]

Harrie, this is a difficult subject because it's about our dignity. I had a terrible period towards last October when I was at the end of my one year Tykerb treatment. I could not concentrate, I was forgetting everything and sometimes I could not even understand what my companion was telling me. It was horrible. I was frightened that it may be that way forever. I just felt like giving everything up. And I tried to hide this from my family although it was stupid because they realized. I didn't even want to speak about it on this forum although I reach out for all the other subjects and get so much precious support.
Then I stopped Tykerb and my onc. made me switch at the same time from Aromasin to Faslodex. Everything improved quite fast. Like Kelly, I now know what someone at the beginning of Alzheimer must feel. Today, my brain is almost like before chemo. Almost. So there is hope. But this is one more subject the oncs. do not like to talk about. I am happy to see it is now discussed in new articles. I will never know if Tykerb or Aromasin caused that since I changed both at the same time. Or was it the accumulation of chemo and Herceptine and then Tykerb and hormonotherapy. Michka