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Lori R · 07-29-2009, 06:32 PM

Carolyn,
I am in awe and your aggressive pursuit of this treatment is an inspiration. The pieces are falling into place!!

I would think the first appointment will be the most stressful as the location, logistics etc. etc. are all new. After a couple of trips it will be a comforting routine.

Here's to getting into the trial and MUCH success.

Wishing you god's speed in this process.....Lori

07-29-2009, 06:32 PM	#15
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Karmanos Cancer Institute, Detroit Carolyn, I am in awe and your aggressive pursuit of this treatment is an inspiration. The pieces are falling into place!! I would think the first appointment will be the most stressful as the location, logistics etc. etc. are all new. After a couple of trips it will be a comforting routine. Here's to getting into the trial and MUCH success. Wishing you god's speed in this process.....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)