HER2 Support Group Forums - View Single Post - ~Mighty Oak Update~7-29-09! Uggh!

Believe51 · 07-29-2009, 05:58 PM

Well, we never did make it to OncoMan's today and Ed was really anticipating it too. I spoke to my nurse advocate with 'a hand's up-in-the-air' attitude and choked back tears.

OncoMan wants to admit Ed for the day and perform all the testing that should have been done in the last several weeks. Uggh. We will see if that is possible.

On the brighter note, his markers are cut in half and this is really great news. We have stopped the Ixempra but after the tests we will start another treatment. I think it will be Temodar for the brain mets and Navelbine, I feel that this would be the easiest of treatments for him. It is that or stop treatment, he is too frail and I will not be responsible for digging a grave.

TUMOR MARKERS CUT IN HALF....now let us see if this passed the BBB! Although the BBB can sometimes be destroyed with the massive amounts of mets he has, Ixempra was all he was on. How I would love to share that news with you all.

Now let me see if I can lasso him into getting admitted tomorrow. Pray for me because I am having major trouble with the way things are happening to him. Besides, I am ready to drug him and take him against his will (laughing)Well, atleast he is getting stronger. Love to all>>Believe51

07-29-2009, 05:58 PM	#1
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	~Mighty Oak Update~7-29-09! Uggh! Well, we never did make it to OncoMan's today and Ed was really anticipating it too. I spoke to my nurse advocate with 'a hand's up-in-the-air' attitude and choked back tears. OncoMan wants to admit Ed for the day and perform all the testing that should have been done in the last several weeks. Uggh. We will see if that is possible. On the brighter note, his markers are cut in half and this is really great news. We have stopped the Ixempra but after the tests we will start another treatment. I think it will be Temodar for the brain mets and Navelbine, I feel that this would be the easiest of treatments for him. It is that or stop treatment, he is too frail and I will not be responsible for digging a grave. TUMOR MARKERS CUT IN HALF....now let us see if this passed the BBB! Although the BBB can sometimes be destroyed with the massive amounts of mets he has, Ixempra was all he was on. How I would love to share that news with you all. Now let me see if I can lasso him into getting admitted tomorrow. Pray for me because I am having major trouble with the way things are happening to him. Besides, I am ready to drug him and take him against his will (laughing)Well, atleast he is getting stronger. Love to all>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!