HER2 Support Group Forums - View Single Post - How many times can u regamma the same pesky spot

dchips1 · 07-14-2009, 11:40 PM

Sorry for not getting back sooner, My husband stole me away and we went up to Northern Arizona in the forest for two weeks. Wow!! God is awsome in all he creates!!! It was perfect, very relaxing hanging out for the fourth of July in "WINSLOW, AZ" with his very caring family. The doctors put me on hold for 6 weeks then rescan my brain. One area was thought to be scarring, and the enlarged area he said had a lot of edema, and since it was the third time being radiated, it was thought to be latent effects of the 12/08 gamma. They did not want to change to tykerb/xeloda/herceptin till the follow up scan at the end of July. I was able to not take steroids yet, I have the bottle sitting on my desk and have to take them if I strt having any Neuro symptoms. Thank You for all being there for Me and others who are on this journey
Darita

07-14-2009, 11:40 PM	#13
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Follow up with Neuro Onc man Sorry for not getting back sooner, My husband stole me away and we went up to Northern Arizona in the forest for two weeks. Wow!! God is awsome in all he creates!!! It was perfect, very relaxing hanging out for the fourth of July in "WINSLOW, AZ" with his very caring family. The doctors put me on hold for 6 weeks then rescan my brain. One area was thought to be scarring, and the enlarged area he said had a lot of edema, and since it was the third time being radiated, it was thought to be latent effects of the 12/08 gamma. They did not want to change to tykerb/xeloda/herceptin till the follow up scan at the end of July. I was able to not take steroids yet, I have the bottle sitting on my desk and have to take them if I strt having any Neuro symptoms. Thank You for all being there for Me and others who are on this journey Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.