HER2 Support Group Forums - View Single Post

Cannon · 07-03-2009, 03:27 PM

I would like to say "oy vey."

What I like about online support groups as opposed to in person ones is that it is easy to take what you like, and leave the rest. There is no need to engage with anyone in a negative way.

What I like about this support group is
1) that it is very focused, on a particular type of breast cancer, that I have
2) that there are tales of hope and inspiration every day
3) that good news is celebrated
4) that people with bad news are supported
5) that there are SUPER knowledgeable people here willing to share their knowledge, expertise, and experience
6) that Joe and Christine bust their butts to make it possible

For some reason, there are group dynamics in any group like this, and some people project their own stuff onto other people, and some people take on stuff that isn't theirs. Try to let it go...

Rebecca

07-03-2009, 03:27 PM	#14
Cannon Senior Member Join Date: Oct 2007 Posts: 203	I would like to say "oy vey." What I like about online support groups as opposed to in person ones is that it is easy to take what you like, and leave the rest. There is no need to engage with anyone in a negative way. What I like about this support group is 1) that it is very focused, on a particular type of breast cancer, that I have 2) that there are tales of hope and inspiration every day 3) that good news is celebrated 4) that people with bad news are supported 5) that there are SUPER knowledgeable people here willing to share their knowledge, expertise, and experience 6) that Joe and Christine bust their butts to make it possible For some reason, there are group dynamics in any group like this, and some people project their own stuff onto other people, and some people take on stuff that isn't theirs. Try to let it go... Rebecca __________________ Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++ Neoadjuvant A/C 4X Dose Dense 11/06 Bilateral Mastectomy (no choice on the right, my choice on the left) Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07 33 Rads Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier) Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause BRCA negative - lots of cancer in my family survivor of thyroid cancer also have Crohn's disease CT and bone scan say NED as of 5/13 dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35 1/13 Acute pancreatitis - are you kidding me? 9/13 started Humira for Crohn's. starting to have some energy again B12 and Vit D both needed supplementation Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years? 4/14 Kidney stones/blockage/infection - related to Crohn's Disease 5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year 6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.