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waiting for my CT scan results
Well, the nurse is calling me back after lunch to let me know what the score is, so I have to wait three hours at home alone now and not sure what to do with myself..
Am I worried? yes, many of you know the score. After hearing that my dear Missy liver mets recurred after 3 years I feel very much at risk.
The sun is shinning outside but I am going to do the mount of dish I have left undone since my scan as I busied myself going out over the last week..
Please please please I have so many plans, I am just really getting back on track with my life as it should have been, perhaps better even as I feel my priority in life are so right now. I hope and want to join the rank of the miraculous on this site ..please please please. I already feel grateful that I have lasted so long in great health, but it is not enough, not enough.. no not enough!!!!!!!
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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