HER2 Support Group Forums - View Single Post

alicem · 06-22-2009, 10:45 AM

Doug,

Thanks so much. I KNEW there was someone else here dealing with male bc, but my chemo brain just couldn't think of it.

My talk at our church was in honor of Father's Day, but I don't want the info to end there. I am trying to figure out where to go from here. Like I mentioned above, I am participating in a biking fundraiser for 10 local non-profit organizations here in central Texas. I have been asked by the executive director to tell my story as time for the ride gets closer (it is in October). I think this is a great way to get the word out that this is not just a woman's disease.

What I think really helps is having personal stories to share, kind of like a testimonial of what you all have gone through, and what you would like others to know. If you have the time to do that within the next weeks or couple of months, and do not have a problem sharing your story, that would be a big help.

Thanks,
Alice

06-22-2009, 10:45 AM	#15
alicem Senior Member Join Date: Jan 2009 Location: Colorado Springs, CO Posts: 430	Doug, Thanks so much. I KNEW there was someone else here dealing with male bc, but my chemo brain just couldn't think of it. My talk at our church was in honor of Father's Day, but I don't want the info to end there. I am trying to figure out where to go from here. Like I mentioned above, I am participating in a biking fundraiser for 10 local non-profit organizations here in central Texas. I have been asked by the executive director to tell my story as time for the ride gets closer (it is in October). I think this is a great way to get the word out that this is not just a woman's disease. What I think really helps is having personal stories to share, kind of like a testimonial of what you all have gone through, and what you would like others to know. If you have the time to do that within the next weeks or couple of months, and do not have a problem sharing your story, that would be a big help. Thanks, Alice __________________ 9/15/08 (age 52) - Mammo: calcifications 9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells. 10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm 10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0 12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3) HER2 score = 3+ 1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive). 1/20/09 - Started chemo: TCH 5/26/09 - FINISHED CHEMO! 1/05/10 - FINISHED HERCEPTIN! 1/22/10 - Port-a-catheter removed! 3/07/18 - Still NED 9/10/23 - Still NED