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Old 06-21-2009, 08:35 PM   #12
alicem
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Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
It went very well, thank you. Everyone was very receptive and responsive. I had one man come up to me later to tell me that he had lost a colleague recently to Male BC. He was in his fifities. One thing that I wanted to ask you about . . . are most men diagnosed with advanced as opposed to early stage BC? I shared Ed's story, as well as Lyle's. Everyone was touched. It was a special moment for me. There are now many friends of mine praying for you and the Mighty Oak. I also had several men tell me that they had a family history of BC, so I hope I raised the awareness bar a little bit.

Additionally I spoke about a local bike ride fundraiser [for Breast Cancer support groups here in Central Texas] that I am participating in this October. The man who lost his friend is planning on joining our team as well as some of his friends. Overall it was a really great day. By the way, if you want to see a picture of me and my bald head, you can visit my personal page at www.mammajammaride.org and search for Alice Mueller

On a lighter note, even though it's been 5 months since I have been wearing my wig, I still had a couple of women come up to me before church and comment on how much they liked my hair cut!!!!!!!!!!!!

Finally I have to plead Chemo Brain here, Marie. I actually came to the site this afternoon to let you know how things went. I logged on, decided to read the new posts first, and then proceeded to forget all about why I showed up here in the first place - so I logged off! Thanks for the prayers, and the nudge - my brain needed it.
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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