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Believe51 · 06-19-2009, 01:54 PM

Paul, I think of what you speak of is Boswellia. The only reason I have refrained from anything more than pain meds for Ed is because of Dana Farber next Wednesday. This is certainly on my list but I will add those other elements also. I will be seeing many more doctors and would like to discuss some things other than typical medicine, like supplements and those misc items. I will make you smile by letting you know that we use Rite-Aid as our Pharmacy and they are the best group of helpers. They even got Tykerb there before the drug company started sending that in the mail. I have had other major problems with some of the unnamed pharmacies and have had not a one there. I am not sure if Rite-Aid still gets the first script of Tykerb for its patients, I think that may have changed, but it was a major save in his treatment at the time. Were you the fine gentleman that followed the Rexin-G thread?? Just curious if you found anything out?? Thank you for chiming in, I appreciate it and do want to follow up.

And I want to thank you all personally from my heart to yours. I shutter as I think where we would be without you and your support and wisdom. With you all, I am never afraid of the dark anymore, for you are my light!>>Believe51

06-19-2009, 01:54 PM	#29
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Paul, I think of what you speak of is Boswellia. The only reason I have refrained from anything more than pain meds for Ed is because of Dana Farber next Wednesday. This is certainly on my list but I will add those other elements also. I will be seeing many more doctors and would like to discuss some things other than typical medicine, like supplements and those misc items. I will make you smile by letting you know that we use Rite-Aid as our Pharmacy and they are the best group of helpers. They even got Tykerb there before the drug company started sending that in the mail. I have had other major problems with some of the unnamed pharmacies and have had not a one there. I am not sure if Rite-Aid still gets the first script of Tykerb for its patients, I think that may have changed, but it was a major save in his treatment at the time. Were you the fine gentleman that followed the Rexin-G thread?? Just curious if you found anything out?? Thank you for chiming in, I appreciate it and do want to follow up. And I want to thank you all personally from my heart to yours. I shutter as I think where we would be without you and your support and wisdom. With you all, I am never afraid of the dark anymore, for you are my light!>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!