HER2 Support Group Forums - View Single Post - Any advice for a stage iv her2- liver mets friend???

tricia keegan · 06-18-2009, 05:15 AM

Hi all,

I'm hoping someone can help that may have experienced what my friend is going through now.
She's been stage iv for eleven years, a great achievement but her original hormone and her2 status was wrong and she's just discovered she's now hormone pos and her2 negative.
She's been through most chemo drugs by now but her onc has decided to give avastin, sadly her insurance company have denied coverage unless it's given with a chemo??
Does anyone know if this is the norm or can help me to help her with advice on how to fight this???
Otherwise she will add a chemo but her body is quite exhausted from years of these toxic meds along with many lasting from side effects so her onc felt avastin alone would have been sufficient for now at least.
I just thought if anyone has faced something similar it would be someone on this board and very much appreciate any help you can give as does my friend.
Thank you, she's quite exhauseted and just can't research much herself right now, she lives in Florida not Ireland btw

06-18-2009, 05:15 AM	#1
tricia keegan Senior Member Join Date: Nov 2005 Location: Ireland Posts: 3,463	Any advice for a stage iv her2- liver mets friend??? Hi all, I'm hoping someone can help that may have experienced what my friend is going through now. She's been stage iv for eleven years, a great achievement but her original hormone and her2 status was wrong and she's just discovered she's now hormone pos and her2 negative. She's been through most chemo drugs by now but her onc has decided to give avastin, sadly her insurance company have denied coverage unless it's given with a chemo?? Does anyone know if this is the norm or can help me to help her with advice on how to fight this??? Otherwise she will add a chemo but her body is quite exhausted from years of these toxic meds along with many lasting from side effects so her onc felt avastin alone would have been sufficient for now at least. I just thought if anyone has faced something similar it would be someone on this board and very much appreciate any help you can give as does my friend. Thank you, she's quite exhauseted and just can't research much herself right now, she lives in Florida not Ireland btw __________________ Tricia Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr Rads x 36 ..oophorectomy August '06 Currently taking Arimidex.. June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density. Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc. 2014 Normal Dexa scan 2018 Mammo all clear, still NED!