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Old 06-18-2009, 03:08 AM   #5
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
Oh, swell, another thing to deal with. Glad it's minor & reversible. Be diligent about wear the sleeve, doing exercises, getting manual lymph drainage, bandage if recommended. Hopefully soon it will only need precautionary tending.
I've had lymphedema for about 6 years. It is a nuisance, but mine is muh worse = fibrotic tissue in the forearm is the mail stuck point. Started out at the effected arm 30 percent larger than the other, now can maintain between 6-9 percent and am okay with that. If I was more disciplined I could probably get it down more, but gave up the nightly bandaging= it was a drag. Would go back to it if things got worse though. I can't prove it but I think what triggered mine was an infection near my finger nail, a side effect when I was on taxotere.
Sorry to make this so much about me. I wish you a minimal change in your routine in your life with this.
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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