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Old 05-26-2009, 08:57 PM   #8
BarbM
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Join Date: Oct 2007
Location: Scottsdale,AZ
Posts: 43
Lida,
I am having my 3rd infusion of Doxil tomorrow (every 4 weeks). I am also on Herceptin every 2 weeks. As long as the Mugas are good, I will continue on this route. I am not on a trial.
Hmmmm....side effects of Doxil haven't been fun. They usually appear at about week 5. Sure enough, that's when mine did. I had mouth sores, pain on swallowing, painful rashes on the tops of my legs from sliding into the seat of my car, tender feet and left hand. Only my left hand because I wear a lymphedema glove. Also, more swelling and pain with the lymphedema...fun! So, basically, I had hand/foot syndrome at areas of rubbing. Next time, I will be much more careful..also, B6 is supposed to be helpful for hand/foot..and l lysine for mouth sores. I've already started to take them.
My blood counts have been great! So, anyway, I'm going to ask for a reduction in dosage tomorrow at my infusion only because of the lymphedema. I will have a PET scan next month.....holding my breath.....
__________________
Dx 5/1/07 (age 47), Left IDC
ER less than 5% +, PR -, HER+ FISH 5.4
Lumpectomy 5/07, Quadrantectomy 6/07
AC 7/07 -10/07, Liver mets dx 9/07 (liver bx)
Taxotere/Herceptin 10/07 -12/07
Herceptin only 1/08 - 7/08
Mastectomy 3/08, RADS 4/08 - 5/08
Brain MRI 5/08 clear
Gemzar/Herceptin 7/08-9/08
Lymphedema 8/08
RADS/Hyperthermia 10/08-11/08
Abraxane/Herceptin 12/08-3/09
Doxil/Herceptin 3/09 to 5/09
Xeloda/Tykerb 6/09-10/09
Navelbine/Xeloda/Tykerb 10/09-12/09
Tykerb/Herceptin 1/11/10
Tykerb/Herceptin/Ixempra 2/1/10
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