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Old 05-15-2009, 06:24 AM   #6
Kathy S in Tokyo
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Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
I had my first post surgery appointment today and

1. The heart scan showed that my heart is in excellent condition and
2. the blood work showed no problems so after consulting with my breast and lung
oncologist,
3. I got the AOK to start the new chemo (OLD OLD OLD stuff, adriamycin/cytotoxan polka, 1 week on, 2 weeks off oom pa pa, oom pa pa) regime today.
4. I turned in my chemo order in at the 3rd floor outpatient treatment room to
give them time to prepare my cocktails and
5. then I got a chest X-ray as a baseline pre-chemo image we can use to compare
after a few treatments to see if the chemo is kickin' butt or not.
6. Then I headed to the neurosurgeon and we talked about decreasing the steroids
I've been on. I'll still need some post chemo but not as much. Hopefully this
will keep the appetite down a bit. I've been hungry all day every day on these
pills.
7. By the time I finished with my head check, my drugs were ready and I sat down
for a series of small bottles of IV drips.
8. Local friend Jill arrived halfway through and we (she more than I) worked on a crossword
puzzle until all of the bottles were empty.
9. We paid the bill, went out to fill my prescriptions and headed out for a late
lunch. The hygeine at the restaraunt was lacking so we will not
return...fortunately I have anti-nausea meds in my veins but I hope ill is OK.
10. Thanks for the company and the escort back home Jill.

I have some periphoral vision trouble in my left eye which already seems to be improving (thankfully) and have been enjoying hikes with the kids (Mothers' day, 5 miles!) and relaxing at home with the cat while the kids are in school.

Thank you for all the thoughts and prayers that sustained me through the craniotomy and beyond.

Hugs,
__________________
Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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