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Believe51 · 05-13-2009, 07:36 PM

Hello Jennifer, I want to thank you for keeping us posted about Joy. I am real sorry about how she is feeling right now. Ed is starting his first Ixempra in the morning so I can not give you advice side effect wise. I can however let you know I have researched this drug as best as possible. It is like any other chemo drug, when it works for one it is real good or it just does not do what we need. Working with the issues in front of us we have agreed this is where we start. Still, we will not know if this is the right chemo, only time will answer this for us. Knowing Joy I feel that she has done whatever she must do while looking at what is right for her at the time. There is that word again, time...Ughh! I have faith in her that given her situation and matters at hand her doctor felt this was a great option. Please tell her that Believe asks for to be patient with herself and her choices, magic potions do not work overnight.

As for not wanting to call her doctor, I strongly urge you to ask her to reconsider. Call the doctor Joy, please express yourself and your needs with him. And do not let him tell you what time it is, you will be the timekeeper! I agree with saying that you must address this constipation problem with him since this can become a major complication. Also, we need to know that she is not dehydrated despite what her intake of fluids appears to be. I understand her fears and wish I could erase them but I think that only her oncologist can help her with that. In my opinion, I really think this may be the drug that brings Joy all that she asks it to do.

Jennifer I thank you again and wish that Joy will change her mind about calling the doctor. He will provide her with a prescription to help with the constipation and get past it. In the mean time have her stay hydrated and maybe drink some prune juice or such. Tell her that I know what it feels like to feel like you are losing the battle and ask her if she will walk besides us on ours. Believe51 tells her there is force in numbers. I also send my love and prayers right from my heart. Mention the word 'latte' and see her smile....let her know that toast is for her. And Jennifer, please tell her to baby step this, if it is not the drug, she will move on to other options. Thank you truely.>>Believe51

05-13-2009, 07:36 PM	#5
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Hello Jennifer, I want to thank you for keeping us posted about Joy. I am real sorry about how she is feeling right now. Ed is starting his first Ixempra in the morning so I can not give you advice side effect wise. I can however let you know I have researched this drug as best as possible. It is like any other chemo drug, when it works for one it is real good or it just does not do what we need. Working with the issues in front of us we have agreed this is where we start. Still, we will not know if this is the right chemo, only time will answer this for us. Knowing Joy I feel that she has done whatever she must do while looking at what is right for her at the time. There is that word again, time...Ughh! I have faith in her that given her situation and matters at hand her doctor felt this was a great option. Please tell her that Believe asks for to be patient with herself and her choices, magic potions do not work overnight. As for not wanting to call her doctor, I strongly urge you to ask her to reconsider. Call the doctor Joy, please express yourself and your needs with him. And do not let him tell you what time it is, you will be the timekeeper! I agree with saying that you must address this constipation problem with him since this can become a major complication. Also, we need to know that she is not dehydrated despite what her intake of fluids appears to be. I understand her fears and wish I could erase them but I think that only her oncologist can help her with that. In my opinion, I really think this may be the drug that brings Joy all that she asks it to do. Jennifer I thank you again and wish that Joy will change her mind about calling the doctor. He will provide her with a prescription to help with the constipation and get past it. In the mean time have her stay hydrated and maybe drink some prune juice or such. Tell her that I know what it feels like to feel like you are losing the battle and ask her if she will walk besides us on ours. Believe51 tells her there is force in numbers. I also send my love and prayers right from my heart. Mention the word 'latte' and see her smile....let her know that toast is for her. And Jennifer, please tell her to baby step this, if it is not the drug, she will move on to other options. Thank you truely.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!