HER2 Support Group Forums - View Single Post - Brain stable, but new Torso Mets

Darlene Denise · 05-01-2009, 08:03 AM

Emmay: We have pm each other in the past about brain mets. So glad the brain is behaving. I am on Xeloda too for a 1/14/09 liver recurrence. I have found several little tips to help with the GI issues. I take Protonx twice a day. I take lactabacillius in the am. I use the capsules that are very tiny that I found at Walgreen's. I take all of my meds except the Xeloda when I get up. Then I eat breakfast and take the Xeloda with water as soon as I am done eating. I wait about an hour and have half a banana. I eat small amounts through out the day. Eggs and bread are my mainstay. I take the Protonx hour before dinner and the Xeloda right after dinner and eat something about an hour later. Usually a ice cream sandwich! I am also eating yogurts as some of my small meals.

Anyway, I had horrid GI issues in the beginning, had to go to ER and hydration everyday for a week. We reduced my dose and all of the above steps I mentioned have really cleaned things up and I am tolerating it very well. I no longer have to take any anti-nausea meds or Immodium.

I hope this helps you in some way. I think of you and your sister frequently and send my well wishes!!

Love and hugs...Your friend Darlene

05-01-2009, 08:03 AM	#12
Darlene Denise Senior Member Join Date: Aug 2008 Location: Virginia Beach, Virginia Posts: 145	Emmay: We have pm each other in the past about brain mets. So glad the brain is behaving. I am on Xeloda too for a 1/14/09 liver recurrence. I have found several little tips to help with the GI issues. I take Protonx twice a day. I take lactabacillius in the am. I use the capsules that are very tiny that I found at Walgreen's. I take all of my meds except the Xeloda when I get up. Then I eat breakfast and take the Xeloda with water as soon as I am done eating. I wait about an hour and have half a banana. I eat small amounts through out the day. Eggs and bread are my mainstay. I take the Protonx hour before dinner and the Xeloda right after dinner and eat something about an hour later. Usually a ice cream sandwich! I am also eating yogurts as some of my small meals. Anyway, I had horrid GI issues in the beginning, had to go to ER and hydration everyday for a week. We reduced my dose and all of the above steps I mentioned have really cleaned things up and I am tolerating it very well. I no longer have to take any anti-nausea meds or Immodium. I hope this helps you in some way. I think of you and your sister frequently and send my well wishes!! Love and hugs...Your friend Darlene __________________ 12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY 01/14/08 2 AC TREATMENTS-NOT WORKING 02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS! 05/12/08 HERCEPTIN EVERY 3 WKS 08/22/08 BRAIN METS! 8 <5MM 09/17/08 CYBERKNIFED BRAIN METS 10/20/08 BRAIN METS SHRINKING 12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT 01/16/09 LIVER REOCUR-XELODA/HERCEPTIN 03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ? 3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN 06/08/09 STUPID BRAIN HAS 3 LESIONS 06/29/09 CYBERKNIFE 07/01/09 LIVER REGRESSION NO NEW METS 07/07/09 TYKERB XELODA HERCEPTIN 11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION 03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!! 03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE 05/21/10 NAVELBINE/HERCEPTIN WORKING! 07/19/10 GOOD BRAIN MRI 08/20/10 LIVER PROGRESSION 09/08/10 TDM1 - NASHVILLE TN 01/10/11 LIVER RESPONDING TO TDM1