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Old 04-30-2009, 04:39 AM   #15
jml
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Join Date: Dec 2006
Posts: 415
Sheila~
Ugh! I'm so sorry those nasty nodes are acting so inconsistently. I'm so glad you've seen a good response in the subcarinal nodes, etc. The others are soon to follow!
I had disease in my supraclav nodes too - 1st time we treated with Gemzar/Herceptin, but they recurred 6 mos after finishing. So the next time we radiated them. It was my 1st experience with Rads- (I've been Stage IV since my primary dx, so to that point it had been chemo only).The rads resolved the supraclav nodes nicely & have been NED there since October, but sternal nodes popped up.
Gemzar/Herceptin seemed to work for a bit, but stopped somwhere midcycle. I'll see my doctor today - in an hour, actually - to make some decisions about the next treatment.
Is rads an option for you? If even to zap the supraclav nodes & reduce the tumor load?

I'm hoping & praying for a good plan to fall into place for you & even better response.

Keep the Faith~

Jessica

Last edited by jml; 04-30-2009 at 02:22 PM.. Reason: typos
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