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Believe51 · 04-24-2009, 09:07 PM

Thanks everyone, the imput helps to get directed to the right road. As mentioned before, Ed has always had a problem with weight and nutrition and right now he is 196lbs (6'2"..uggh). He is really beat up from this fight and the concern to go a bit easy is vital. Double-edged sword....we need to keep the cancer at bay but must go easy enough for him to live through it. Lately he has been lightly talking about 'there will be a day that I may want to stop treatment'. He will fight for every second of every day, but his quality of life stinks right now and I do understand.

For now I am continuing the research I have been doing for the last several months. The OncoMan can get whatever he needs and that gives us peace of mind. I also feel secure living in the epicenter of many remarkable institutions. Kind of a weird blessing (smiling).>>Believe51

04-24-2009, 09:07 PM	#18
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Thanks everyone, the imput helps to get directed to the right road. As mentioned before, Ed has always had a problem with weight and nutrition and right now he is 196lbs (6'2"..uggh). He is really beat up from this fight and the concern to go a bit easy is vital. Double-edged sword....we need to keep the cancer at bay but must go easy enough for him to live through it. Lately he has been lightly talking about 'there will be a day that I may want to stop treatment'. He will fight for every second of every day, but his quality of life stinks right now and I do understand. For now I am continuing the research I have been doing for the last several months. The OncoMan can get whatever he needs and that gives us peace of mind. I also feel secure living in the epicenter of many remarkable institutions. Kind of a weird blessing (smiling).>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!