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Old 04-16-2009, 08:39 AM   #32
lkc Gumby
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Join Date: Feb 2006
Posts: 437
Hi Ellie, I am so sorry you are going through all this. I quite agree with Jacqueline,You need to be your own advocate to receive optimal care. it sucks, but it is true.I know it's hard enough to deal with the dx, but fighting for treatment and getting conflicting rec. of Tx is extremely difficult. Alot of us have been there.
Please do not give up on being assertive with your care. I think it is wise to get the pathology of the nodes removed, and then treat aggressively. Please do not be afraid of the Taxanes, Neutropenia can be managed. We will help you.
Techinically your one doc is right ;there is no specific research on H&T tx. for pos nodes in " unaffected breast". However, you are quite correct that H&T do work synergistically overall for HER pos disease. We all need to remember that Herceptin is relatively new and there are still limited amount of studies to refer to.

It angers me that I think the conflict with the docs are their lack of knowledge in your particular scenario , and also the cost considerations.
I pray you are able to receive the you tx you deserve and works best for you.
God Bless.
__________________
Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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